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Our Legislative Accomplishments

The MDSC’s advocacy in the public policy arena has lead to the passing of multiple landmark bills that ensure equal rights, inclusion and support for the Down syndrome community. To learn more about our legislative model, click here.


2017-2018

Statewide Legislative Platform

National Legislative Platform

Help us turn the 2017-2018 legislative platforms into law!

 

 

2017

Executive Director Maureen Gallagher Named National Down Syndrome Society (NDSS) Ambassador of the Year

At the 2017 Buddy Walk on Washington, Congressman Joe Kennedy III presented

the MDSC's Executive Director Maureen Gallagher with the NDSS Champion of Change Award, honoring her leadership and vision and the MDSC's groundbreaking advocacy efforts.

Congressman Kennedy said it best: "[Maureen] isn't here today because it's her job. She's here today because she believes in the abilities of every single person in this room. She wants to make this nation, this world a little kinder, a little fairer for those with Down syndrome. She's here because this fight matters and we will never again allow people with Down syndrome to be overlooked and forgotten."

Read the coverage by the Boston Globe here.




2016

An Act Concerning Nondiscrimination in Organ Transplantation

On December 2nd, 2016, Governor Charlie Baker signed the MDSC’s Organ Transplant Bill into law. This priority bill, sponsored by Representative James Cantwell, prevents discrimination against anyone with an intellectual or developmental disability in need of an organ transplant, ensuring that all people with Down syndrome have access to the live-saving treatments they need.

 

Governor Charlie Baker with Self-Advocate Melissa Reilly

 

 

2014

ABLE Act

The landmark ABLE Act allows families to save for their loved ones with disabilities without being punished. Since the passing of the act in 2014 (our lobbying led to the entire Massachusetts congressional delegation sponsoring the bill), implementation of the ABLE Act remains a top national priority. In the fall of 2015, the MDSC submitted comments to the federal government advocating for provisions to enhance the flexibility of ABLE accounts for self-advocates and their families. Soon after, the IRS issued interim guidance that will make it easier for state administrators to establish and administer ABLE programs in an expedient and efficient manner.

This spring, the MDSC celebrated the launch of tax-advantaged ABLE accounts for individuals with disabilities in Massachusetts at the State House. Going forward, people with Down syndrome in Massachusetts and the rest of the country will be able to work and save for their future without losing access to important benefits.

See the complete communication about the Massachusetts passage of the ABLE Act from our Executive Director here.

Read the Boston Globe’s coverage of the Massachusetts launch here.

 

 

 

An Act Relative to Real Lives

The Real Lives Bill, sponsored by Representative Tim Sannicandro, streamlines the funding mechanism for people with disabilities receiving state support and allow families greater control and flexibility over their supports.

 

Read the Boston Globe’s article in support of the Real Lives Bill here.

Learn more about the Massachusetts Department of Developmental Services' Self-Determination Advisory Board (SDAB), which executes and reviews progress made on the Real Lives Bill's agenda.

 

An Act to Require National Background Checks

The National Background Check (NBC) Bill requires employees working with persons served by the Massachusetts Department of Developmental Services (DDS) to undergo federal criminal background checks in addition to the state checks that are already mandatory.

 

Read Executive Director Maureen Gallagher’s testimony in support of the NBC Bill here.

 

See the complete communication about the passage of the Real Lives Bill and the National Background Check Bill from our Executive Director here.


2012

An Act Relative to Down Syndrome Genetic Test Results

This law, sponsored by Representative Tom Sannicandro and Senator Katherine Clark, mandates that new or expectant parents of children with Down syndrome are given the latest, culturally-appropriate information about what it means to have a child with Down syndrome and contact information for services to ensure they have access to the supports that every family in their position needs. The legislation specifically identifies the MDSC's Parents First Call Program as a key resource for these families, formally recognizing our signature outreach program, which is a national model in the field. Given recent scientific developments around prenatal diagnosis, it was critical to get a bill like this on the books.

See the complete communication about the passage of the Prenatal Bill from our Executive Director here.

Watch CBS coverage and TIME magazine’s article on the impact of advances in prenatal testing on the Down syndrome community here.

 

 

 

2010

 The MDSC is honored with the National Down Syndrome Society's  Advocacy Organization of the Year Award.