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Clinics & Programs
Massachusetts, and metropolitan Boston specifically, is home to some of the best medical research facilities and healthcare clinics in the world. This is true as well in the field of Down syndrome study and healthcare services. See below for information about the area’s Down syndrome clinics at Children’s Hospital Boston, Massachusetts General Hospital, and the Down Syndrome Center at UMass Memorial Medical Center.
MassGeneral Hospital Down Syndrome Program
In July 2012, Massachusetts General Hospital opened a comprehensive Down Syndrome Program, which integrates state-of-the-art resources with compassionate, comprehensive care through a multi-disciplinary approach. National experts from Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye and Ear Infirmary help with any medical issue that may occur.
MGH's Down Syndrome Program has four distinct clinics to ensure that people with Down syndrome receive the specialty care that is specific for their age group:
Adult Clinic (ages 21 and older)
Adults will be supported to lead healthy lives marked by meaningful engagements with their communities.
Infant and Toddler Clinic (ages birth-5)
Families will be educated about Down syndrome and comprehensive supports will be provided for their child’s early needs.
Child Clinic (ages 5-13)
The healthcare of children will be maximized so that they can achieve successes during school-aged years.
Adolescent and Young Adult Clinic (ages 13-21)
Families and youth will be supported and educated about transition planning. The goal is for your child to be prepared for adulthood and as engaged in their care as possible.
The program can also provide consultations in a private setting for expectant parents who have received a prenatal diagnosis of Down syndrome. See complete staff bios here. For more information and to make an appointment visit their website at www.massgeneral.org/downsyndrome. Send emails with any questions to DownSyndrome@partners.org.
Children’s Hospital Boston Down Syndrome Program
The Down Syndrome Program at Boston Children's Hospital offers specialized services for children with Down syndrome and their families. They work closely with children, parents, medical specialists, community physicians, and educators.
We offer prenatal consultation for families who receive a prenatal diagnosis of Down syndrome. These confidential appointments are held in the Advanced Fetal Care Center where other appointments can be coordinated as needed such as genetics, cardiology, etc.
We offer an opportunity for a developmental pediatric visit to review medical issues, developmental questions, information and resources. For babies born in the Longwood medical area or hospitalized at Boston Children’s Hospital, whenever feasible we offer visits from the Program Coordinator or a parent volunteer to provide support and information.
Infant-Toddler: Interdisciplinary Team
The Down Syndrome Program clinic for children from 7 months to 3 years provides a comprehensive evaluation using an interdisciplinary team approach. Each child has individual appointments with specialists in developmental pediatrics, nutrition, dentistry, audiology, physical therapy, and speech language pathology with expertise in feeding and swallowing.
School age: Individualized Multi-disciplinary Care
For children age 3–21 years, we offer an individualized approach. We provide a comprehensive developmental pediatrics visit and can add other appointments to this visit according to the unique needs of each child. We can coordinate same-day appointments for other specialty care such as orthodontics, audiology, cardiology, physical therapy, ophthalmology, dentistry, nutrition, etc.
Additional Supports: More than a Clinic
We are proud to host the Allen Crocker Speaker Series each month that families can attend in person or view online live. We offer family support and more in depth services to families through our Community Health Advocate Case Coordinator. We also offer exciting, interactive workshops throughout the year on Learning Sign Language, Creating Visual Aids, etc.
For more information, visit Children’s Hospital Boston Down Syndrome Program or initiate an appointment by calling 857-218-4329 or by emailing Angela Lombardo here. You can also read about them in their Program Brochure.
Down Syndrome Center at UMass Memorial Children's Medical Center
UMass Memorial Children’s Medical Center recently opened its Down Syndrome Program, a comprehensive, personalized, one-stop resource for children and their families. Program coordinator Gwen Roberts Sokoloff, BSN, RN, CCRN, maintains regular communication with families while managing all of their child’s appointments with medical specialists, community physicians and educators.
We service prenatal families and families of infants, childrens and young adults with Down syndrome, and offer specialists in the following: • Audiology • Cardiology • Dermatology • Development/Behavioral Pediatrics • Endocrinology • ENT • Gastroenterology • Genetics • Hematology/Oncology • Nutrition • Orthopedics • Psychiatry • Pulmonology • Social Work
For more information or to schedule an appointment, call 774-443-UMDS (8637)