Whether you’re a new or expectant parent, a family of color, father or grandparent of someone with Down syndrome, if you’re looking to connect with others in your shoes, MDSC and our dozens of local support group partners around the state can help.
Arlington
Arlington Down Syndrome Parents Anne Pelz 617-905-5200
Athol Area
North Quabbin Up Syndrome Social Group
Informal get-togethers for families of all ages with a loved one with Down syndrome including caregivers, grandparents and siblings Karon Parker
978-871-5020
Attleboro/Franklin Area
Trisomy 21 Club Shannon Paul
508-695-4930
Mom’s night out each month with quarterly playgroups. Facebook page
Berkshires Area
BCARC Down Syndrome Family Group Chris Ferrari
413-499-4241 Group meets periodically and hosts a variety of social events throughout the year Facebook page
Brockton Area
Brockton EI/BAMSI support group Susan Stratoti
508-326-9872 Monthly Tuesday evening meetings; both informal get-togethers as well as outside speakers; children welcome at the informal meetings.
Cape Cod
The Meet-up! Sarah Rock
203-554-3619 A group for folks on the Cape who have kids with Ds and other genetic and developmental quirks to get together, share information, have play dates and dinners, make plans and more! Facebook page
Central Mass
Central MA Family Group Jessica Young
774-239-5992 Meets every other month on a Saturday morning; families with school-age children or a prenatal diagnosis; all family members welcome. Facebook page
Fitchburg Area
Down Syndrome Support Group Kathy Black
978-602-8697 Meets monthly on the first Saturday of the month from 10 AM – noon.
Foxboro Area
Foxboro YMCA Playgroup Hollie Mendillo
Samantha Devoid 401-487-3123 Informal play group for families with children 0-8; all family members welcome
Greater Boston
T21 Travelers Network Facebook Group Private secret Facebook group supporting families of younger children with Down syndrome. Please contact firstcall@mdsc.org for more information and/or to be added to the group.
Martha’s Vineyard
Up Club! Family connections and resources on MV and host a variety of events Lisa Brown 774-563-0132
21 FrienDS Kim Legendre 508-989-2706 A nonprofit family and support group started by parents with the same interests in mind. Meets monthly through play dates, familiy activities, seminars and informational meetings.
South Shore Area
Braintree Support Group Jeanne Zarrella
781-789-6035 Mom’s night out monthly; currently families have children 4-22.
South Shore Parents and Siblings of Adult Children with Special Needs Taffy Nothnagle
781-383-0895 Hosts periodic dinner meetings to offer support and sharing.
South Shore Play Group Danny Jarboe Quarterly playgroup at the Hanover YMCA for families of children 0-6 and their siblings.
Western Massachusetts
Down Syndrome Resource Group of Western Mass. Jennifer Johnson Provides a variety of events for families with children of all ages. Website
Play Group for Families with Younger Children Anna O’Rourke
413-262-7008 The Down Syndrome Program Resource Group of Western MA invites families of younger children to come connect, share, learn and play. Meets every other month on a Saturday morning at Jericho in Holyoke. Facebook page
Massachusetts-wide
MDSC New Family Socials Sarah Cullen 781-221-0024 Meets every month on a Saturday morning; families with children up to age 4; all family members welcome.
MDSC 4-7 Play Group Sarah Cullen
781-221-0024 For families whose child with Down syndrome is age 4-7 and siblings; Quarterly activities.
MDSC 8-12 Group Sarah Cullen
781-221-0024 For families whose child with Down syndrome is age 8-12; Quarterly activities.
Autism Spectrum Disorder/Down Syndrome
Down Syndrome-Autism Connection Charlotte Gray: 978-394-8416
Jeanne Doherty: 978-761-3950
Virtual support group the last Tuesday of every month at 8pm to network and share resources. Facebook page
Boston Children’s Hospital Speaker Series
Down Syndrome Program Angela Lombardo
857-218-4329 Monthly, educational talks that may be attended or viewed on-line. Website
Breastfeeding
Julia’s Way Ella Cullen Support group for breastfeeding moms the first Thursday of each month at 1pm Website
Parents of Children with DS and Other Special Health Care Needs Jeanne Doherty 978-761-3950 Support group co-hosted with Boston Children’s Hospital Down Syndrome Program (meets quarterly).
Mental Health
MDSC Mental Health Support Group Jeanne Doherty: 978-761-3950
Patti MacPhee
For parents and caregivers of teens and adults with Down syndrome and mental health challenges. Every other month meetings facilitated by Mary-Frances Garber, licensed genetic counselor. Workshops with guest speaker held 2-3 times per year. More about MDSC Mental Health resources | Facebook page
Mosaic Down syndrome
Mosaic Down Syndrome Support Group Sonya Cabral 617-308-7441 Support and information for families whose child has Mosaic Down syndrome. Facebook page
Familia Up Down Denise Ribeiro 508-615-7637 Host a variety of events for Portuguese-speaking families in the greater Worcester area and across MA Organizamos uma variedade de eventos para familias de lingua portuguesa na area da grande Worcester e em toda area de MA Website
Spanish-Speaking
Familias Latinas Unidas por el Sindrome de Down Patria Espinal
617-953-6589 Meets monthly on the first Saturday of the month; all family members welcome; currently mostly families who have a teen or an adult. Facebook page
Spanish Support Group for Families Whose Child is 10 or Younger Tatiana Salinas
781-365-9965 Meets monthly
National Down Syndrome Congress
1-800-232-NDSC Website
National Down Syndrome Society
1-800-221-4602 Website
Global Down Syndrome Foundation 303-321-6277 Website
MDSC Affiliates
Dads Appreciating Down Syndrome (D.A.D.S.)
Massachusetts D.A.D.S., an affiliate of MDSC, is an organization of fathers of children with Down syndrome. D.A.D.S.’s mission is to assist and support each other and their families through fellowship and action.
Members come together at monthly meetings to share insights, stories, and experiences that are unique to fathers of children with Down syndrome. They invite expert speakers to discuss medical, educational, financial, social and many other challenges that affect their children’s lives.
D.A.D.S. objectives are:
To create a network of fathers willing to develop a program based on the needs of the fathers themselves.
To enhance a father’s knowledge and provide resources for engaging with children and individuals with Down syndrome.
To enhance personal advocacy skills.
To heighten a family’s ability to cope with the unique challenges of raising a child with Down syndrome.
To provide a safe atmosphere of support where fathers can openly share.
Jeanne Doherty and Charlotte Gray of the Down Syndrome-Autism Connection
The Down Syndrome-Autism Connection™ is the only nonprofit organization dedicated solely to co-occurring Down syndrome and autism spectrum disorder (DS-ASD) in the United States.
The Connection was founded in 2007 in Denver as a collaborative project by parents and professionals seeing a great need to reach out to families and individuals affected by DS-ASD. In 2011, they became their own non-profit organization. While they are headquartered in Colorado, they care deeply about your journey no matter where you live. In this age of accessible technology, they are able to support people from coast to coast, and even overseas. They are gathering a global community in support of those with DS-ASD.
Their mission is to provide education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism.
Their goal is to ensure that families, teachers, and healthcare providers receive the education and support they need — with the ultimate goal being that children and adults with DS-ASD will receive the understanding, education, medical care and opportunities they so greatly deserve.
If you are a parent wondering if your child (or adult child) may be affected by autism spectrum disorder, they want you to know that you are not alone. If you are a professional wanting to learn more, they are here for you, too! Thank you for joining the DS-ASD community!
DSAC became an affiliate of the MDSC in 2011, falling under our 501(c)3 non-profit status. “By joining forces together, the MDSC and DSAC will ensure that all families who have children with the dual diagnosis of Down syndrome and autism feel welcome and have access to the resources and supports they need.” said Maureen Gallagher, Executive Director of the MDSC.
Support Group Leader Retreat
MDSC Support Group Leader Retreat 2020
MDSC is committed to ensuring that families and individuals with Down syndrome have the local supports and resources they need. Since 2014, we have brought together dozens leaders in the Down syndrome community from across the state for a two-day Support Group Leader Retreat.
Over the weekend, Support Group and Play Group Leaders gather to share experiences and strategize how to advance our mutual goals of strengthening supports for people with the Down syndrome and their families whatever their location, background or life circumstances.
