Each month, we offer a virtual support group for breastfeeding, pumping, and expectant mothers of babies with Down syndrome, co-moderated by Jill Rabin, SLP, IBCLC and Rachel Murphy, RN, IBCLC mother of breastfed child with Down syndrome. Come share about your journey, meet other mothers, and ask any questions you may have! Common topics include sleepiness, weight gain, NICU stay, getting back to breast, breastfeeding with cardiac or other conditions or surgeries. Please note time zone and adjust accordingly.
We may occasionally welcome medical students who are interested in gaining information and insight about breastfeeding babies with Down syndrome to benefit their knowledge and practice.
To ensure the respectful space of expectant and new moms, we ask that you find a private space for this meeting and please note that dads/male partners are not allowed to participate. We hope you appreciate the sensitivities and safe space we provide. We look forward to meeting you!
The group is free, but advanced registration is required.
This group typically meets the first Thursday of each month, but exact dates show when you register below! You will be sent a Zoom link for each session you register for.
Hear the music of Camille Saint-Saens and follow the story of Alfie, a young boy who struggles being social. More comfortable with his stuffed animals than with people, Alfie plays with his toys alone each night to escape the world. One night, after he’s gone to sleep, watch as his animals come to life to help Alfie on a journey to self-acceptance.
In this world premiere by Gianni Di Marco, United Dance is thrilled to present a narrated performance for all ages!
Join us for the MDSC Mixer before the show! We are thrilled to team up with United Dance once again to start premiere night with a social mixer. Come join us at 6:00pm for delicious treats and drinks, create an animal headpiece, snap some photos, and connect with other families in the Down syndrome community.
Ticket Price – $12.50 each *This is a special offer for MDSC families & friends!*
*Please note, this is NOT a drop off event. Parents and/or caregivers are required to stay for the duration of this event.
The Massachusetts Down Syndrome Congress (MDSC) and the Boston Children’s Hospital Down Syndrome Program are co-hosting a quarterly support group for families of children with Down syndrome and special health care and/or behavioral needs.
Parents, please join us for a Zoom to connect with others, feel supported and share what you would like from this group (virtual/in-person meetings, speakers, resources, peer-to-peer support, etc.) on Saturday, April 27 from 9 – 10:30 AM with Angela Lombardo, LICSW and Sarah Cullen.
Please pre-register so we can send friendly reminders closer to the meeting, or email Sarah Cullen at scullen@mdsc.org or Angela Lombardo at angela.lombardo@childrens.harvard.edu for more information!
We are here for you!
Each month, we offer a virtual support group for breastfeeding, pumping, and expectant mothers of babies with Down syndrome, co-moderated by Jill Rabin, SLP, IBCLC and Rachel Murphy, RN, IBCLC mother of breastfed child with Down syndrome. Come share about your journey, meet other mothers, and ask any questions you may have! Common topics include sleepiness, weight gain, NICU stay, getting back to breast, breastfeeding with cardiac or other conditions or surgeries. Please note time zone and adjust accordingly.
We may occasionally welcome medical students who are interested in gaining information and insight about breastfeeding babies with Down syndrome to benefit their knowledge and practice.
To ensure the respectful space of expectant and new moms, we ask that you find a private space for this meeting and please note that dads/male partners are not allowed to participate. We hope you appreciate the sensitivities and safe space we provide. We look forward to meeting you!
The group is free, but advanced registration is required.
This group typically meets the first Thursday of each month, but exact dates show when you register below! You will be sent a Zoom link for each session you register for.
Join us at Inclusive Fitness for an exciting evening of movement and fun, exclusively for individuals aged 20 and above with Down syndrome! The expert coaches at Inclusive Fitness will guide the group through a variety of exercises suitable for all fitness levels, engage everyone in some interactive games, and conclude the evening with a delightful dinner shared among friends.
This event is perfect for newcomers to fitness, fitness enthusiasts, or anyone looking to have a great time and connect with new friends! Registration Required!
*Please note, this is a drop off event. Parents and caregivers are welcome to stay if preferred.
Join us for an exciting wrestling match to support the MDSC! This family-friendly event is open to individuals with Down syndrome aged 13+, as well as their family members and friends. All proceeds from the event will be donated to the MDSC.
Your ticket includes entry to the event, a food voucher for 2 pieces of pizza (gluten-free available), soda or water, chips, candy, and a 50/50 raffle ticket!
For our sensory-sensitive guests, please note that there will be speakers playing music during the beginning and end of matches. There will also be some music played before the show and during intermission. Wrestling fans may also be cheering loudly throughout the show, so we recommend bringing noise-reducing headphones.
Parking is available in the back of the building and on the side street next to the parking lot. The front side of the building has a handicapped accessible entrance/lift.
Don’t miss out on this fun-filled evening for a great cause!
*Please note, this is NOT a drop off event. Parents and/or caregivers are required to stay for the duration of this event.
Each month, we offer a virtual support group for breastfeeding, pumping, and expectant mothers of babies with Down syndrome, co-moderated by Jill Rabin, SLP, IBCLC and Rachel Murphy, RN, IBCLC mother of breastfed child with Down syndrome. Come share about your journey, meet other mothers, and ask any questions you may have! Common topics include sleepiness, weight gain, NICU stay, getting back to breast, breastfeeding with cardiac or other conditions or surgeries. Please note time zone and adjust accordingly.
We may occasionally welcome medical students who are interested in gaining information and insight about breastfeeding babies with Down syndrome to benefit their knowledge and practice.
To ensure the respectful space of expectant and new moms, we ask that you find a private space for this meeting and please note that dads/male partners are not allowed to participate. We hope you appreciate the sensitivities and safe space we provide. We look forward to meeting you!
The group is free, but advanced registration is required.
This group typically meets the first Thursday of each month, but exact dates show when you register below! You will be sent a Zoom link for each session you register for.
