Attleboro/Franklin Area
Trisomy 21 Club
Shannon Paul
508-695-4930
Mom’s night out each month with quarterly playgroups.
Facebook page
Berkshires Area
BCARC Down Syndrome Family Group
Chris Ferrari, 413-464-7262 X 11
Nancy Willey, 413-464-7262 X 13
Members of the group are families that have a child, or an adult child with Down Syndrome. Some of the families receive supports from Berkshire County Arc, and others are community members only served by the support group itself. The group was founded in 2006 and aims to support people by fundraising, educating, building natural supports and having fun.
Facebook page
Cape Cod
The Meet-up!
Sarah Rock
203-554-3619
A group for folks on the Cape who have kids with Ds and other genetic and developmental quirks to get together, share information, have play dates and dinners, make plans and more!
Facebook page
Central Mass
Central MA Family Group
Jessica Young
774-239-5992
Supporting all families including expecting parents in the Central Massachusetts area. All family members are welcome to attend the events we host. We are known for our Worcester Railers & WooSox outings, along with several other informal meet-ups throughout the year. Learn about all our events by connecting through email or on our Facebook page.
Facebook page
North Central MA Families
North Central families meet the first Saturday of the month from 10AM -Noon at the Seven Hills family Support Center. At times, this group meets in the community so please check put our webpage for locations.
Kathy Black
978-602-8697
Webpage
Foxboro Area
Down Right Fun Play Group
Hollie Mendillo
401-487-3123
Informal play group for families with children 0-8; all family members welcome
Martha’s Vineyard
Up Club!
Family connections and resources on MV and host a variety of events
Lisa Brown
774-563-0132
North Shore
Gettin’ Down in the North Shore
Jenny Graves: 978-360-2797
Caren D’Agnese: 781-771-6272
Informal play group for families with younger children.
Facebook page
Southeastern Mass.
21 FrienDS
Kim Legendre
508-989-2706
A nonprofit family and support group started by parents with the same interests in mind. Meets monthly through play dates, familiy activities, seminars and informational meetings.
South Shore Area
Braintree Support Group
Jeanne Zarrella
781-789-6035
Mom’s night out monthly; currently families have children 4-22.
South Shore Parents and Siblings of Adult Children with Special Needs
Taffy Nothnagle
781-383-0895
Hosts periodic dinner meetings to offer support and sharing.
South Shore Play Group
Cara & Mike McDonough
617-560-0028
The South Shore Play Group serves families whose child is 0–12.
Western Massachusetts
Down Syndrome Resource Group of Western Mass.
Joyce Leckey
Provides a variety of events for families with children of all ages.
Website
Play Group for Families with Younger Children
Anna O’Rourke
413-262-7008
The Down Syndrome Program Resource Group of Western MA invites families of younger children to come connect, share, learn and play. Meets every other month on a Saturday morning at Jericho in Holyoke.
Facebook page
Massachusetts-wide
MDSC New Family Socials
Sarah Cullen
781-221-0024
Meets every month on a Saturday morning; families with children up to age 4; all family members welcome.
T21 Travelers Network Facebook Group
Public Facebook Page (PM this page to request access to private Facebook group)
The T21 Travelers Network is a group of parents and caregivers of individuals with Down syndrome. They are an organic network (primarily in MA) that has expanded via word-of-mouth over the course of 10+ years. At their core they are a group of encouragers. They are a recharging station to sustain each of us individually, and all of us collectively, as we travel a long road with challenges unique to those who have a child with Down syndrome. Grandparents and expectant parents always welcome.
MDSC 4-12 Group
Tatiana Salinas
781-365-9965
For families whose child with Down syndrome is age 4-12; Quarterly activities/events.
Autism Spectrum Disorder/Down Syndrome
Down Syndrome-Autism Connection
Charlotte Gray: 978-394-8416
Virtual support group the last Tuesday of every month at 8pm to network and share resources.
Facebook page
Boston Children’s Hospital Speaker Series
Down Syndrome Program
Angela Lombardo
857-218-4329
Monthly, educational talks that may be attended or viewed on-line.
Website
Breastfeeding
Julia’s Way, a Program of the MDSC National Parents First Call Center
Virtual breastfeeding support group for breastfeeding, pumping, and expectant mothers of babies with Down syndrome. Co-moderated by Jill Rabin, SLP, IBCLC and Rachel Murphy, RN, IBCLC mother of breastfed child with Down syndrome. Come share about your journey, meet other mothers, and ask any questions you may have! Common topics include sleepiness, weight gain, NICU stay, getting back to breast, breastfeeding with cardiac or other conditions or surgeries.
Register for the next virtual support group | Learn more about Julia’s Way | Facebook page
Brothers & Sisters
Brothers & Sisters Programming (not a support group)
781-221-0024
Exclusive workshop track geared specifically for youth siblings of people with Down syndrome each March at MDSC’s Annual Conference.
More about MDSC Brothers & Sisters Supports
D.A.D.S Group
Dads Appreciating Down Syndrome
Jeff Roback
339-788-1460
Variety of DADS meetings and family events
More about MDSC’s D.A.D.S. Affiliate | Website | Facebook page
Grandparents
MDSC Grandparents Support Group
Sue Laing: 413-519-2777
Barbara Sherman: 603-508-1715
More about MDSC Grandparent supports
Mental Health
MDSC Mental Health Support Group
Patti MacPhee
For parents and caregivers of teens and adults with Down syndrome and mental health challenges. Every other month meetings facilitated by Mary-Frances Garber, licensed genetic counselor. Workshops with guest speaker held 2-3 times per year.
More about MDSC Mental Health resources | Facebook page
Mosaic Down syndrome
Mosaic Down Syndrome Support Group
Sonya Cabral
617-308-7441
Support and information for families whose child has Mosaic Down syndrome.
Facebook page
African American/Black Families
21 Shades
Melissa Elow: 617-416-5240
Terri James Solomon: 347-882-9694
Monthly calls and social events; Open to all family members. Second Thursday 8-9 PM.
Facebook page
Portuguese-Speaking
Amigos DS
Izabella DaCosta: 617-671-6670
Geovanna Vicente: 857-888-1043
Social events for Portuguese-speaking families in the Arlington area
Familia Up Down
Denise Ribeiro
508-615-7637
Host a variety of events for Portuguese-speaking families in the greater Worcester area and across MA
Organizamos uma variedade de eventos para familias de lingua portuguesa na area da grande Worcester e em toda area de MA
Website
Spanish-Speaking
Familias Latinas Unidas por el Sindrome de Down
Patria Espinal
617-953-6589
Meets monthly on the first Saturday of the month; all family members welcome; currently mostly families who have a teen or an adult.
Facebook page
Spanish Support Group for Families Whose Child is 10 or Younger
Tatiana Salinas
781-365-9965
Meets monthly
Rhode Island
Down Syndrome Society of Rhode Island
Website
New Hampshire
New Hampshire Down Syndrome Association
603-479-1589
Website
Maine
Maine Down Syndrome Network
866-571-2223
Website
Connecticut
Down Syndrome Association of Connecticut
888-486-8537
Website
Vermont
Champlain Valley Down Syndrome Group
Website
National Organizations
Down Syndrome Diagnosis Network
Website
Facebook Page
LuMind IDSC
781-825-1300
Website
National Down Syndrome Congress
1-800-232-NDSC
Website
National Down Syndrome Society
1-800-221-4602
Website
Global Down Syndrome Foundation
303-321-6277
Website